The next 2 months were really exciting for us as Luke really started to 'get it' and he was starting meet some physical milestones. Yes, he showed symptoms of fatigue and it was combined with frustration. It perplexed us. We could see he wanted to do things physically---but could not and would scream out. This is when we really communicated to Dr. Susan I. that we were 'concerned'.
Luke could lean up against the chair and had a hard time balancing himself.
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