Blog family, THE GENE RESULT IS IN.
We got the call from the Mayo Clinic today. Luke has officially been diagnosed.
He has the Rapsyn gene that they suspected and it's one of the most treatable and optimistic gene mutations of CMS out there.
Our child is healed. Thank you Lord, we are in amazement.
We are still in shock. It's almost hard to believe that our baby is 2 days away from being 20 mths old. It has taken us this long to get here. But, so worth the wait.
Loved ones, we love you. This is just a chapter closed. By God's grace, we hope to see a book in Luke with many more chapters.
We are so elated. Luke honey, your the love of our lives. Nothing has changed...the only change is now we know what to pray for specifically and the rest is God.
We love you so much. Mommy and Daddy
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