As of 2017 I've been redirecting anyone that finds my blog about Congenital Myasthenic Syndrome to the following CMS FACEBOOK SUPPORT GROUPS.
You will need to make sure you have a facebook account to access these groups.
Please ask to join them and you will so much love the CMS support.
HERE ARE THE 2 GROUPS I would highly recommend you JOIN:
#1 FACEBOOK Congenital Myasthenic Support for EVERYONE
#2 FACEBOOK Congenital Myasthenic Support for Parents
See you in the groups!
Please note: "With God all things are possible".
You can do this. He provided medication and support for CMS and know that God is in full control and will show you His way as you embark on this journey. All things are for God's GLORY.