Monday, February 14, 2011

Kiss da momma!

Ok...This is truly a video that is heart melting. My baby kissed da momma on the lips for the first time in his life!! At 5 years old Luke decided to take my face, angle it right at him and KISS ME and MAKE THE "MMMMMMMWUA"> Sound with it!!!! LOL!!

I was sitting there and all the sudden he came up, grabbed my face and intentionally kissed me on the mouth. It was adorable. I about died! After he got the reaction from me I immediately said "Heather..you gotta get this on video" and threw her my phone literally! Hence why the sideways view. Dang those iphones!

The funny thing about this day is that he did it over and over. And, he even tried to stick his tongue in my mouth!! LOL. I kept my mouth shut tight on those! LOL. But, after the day was over...all DONE. The next day I said "Luke..give momma a kiss". He ran. So funny!!!!

So, I had my day of glory. Loved it. Love my baby boy. I call this video "MMMMWUA" in Luke's sweet voice.

Tuesday, February 8, 2011

My day

I just needed to post about how much I love my son. He's my world. He's perfect to me. And I love him so much.

It's been a very hard week. My Luke grounds me.

Love you,
A

P.S. If you can, please pray for my BFF. I love you Deb. God is the only one that will never fail us. For this, I am thankful. Love you so much.

Saturday, February 5, 2011

Cabin fever ended we hope!

I know. I affirm you. I look amazing in this light. Jonathan took the picture. The kids were vegging out with me and watching Sesame Street. It was so sweet. They just sat there real still and let momma hold them tight. At one point I tried to get up and Luke said "NO" and hugged me tighter.

Insert MELT HEART. Of course, I stayed. :) GLADLY!

Here is the ONE picture of me during our staycation. Luke got out today and walked; Jonathan went to work and we ended the day with me/Jon going out to eat for a bit by ourselves. WE DROVE..it was amazing.

The first picture below I call "Snuggle momma".
The bottom 2 pictures were taken 2 days ago when the kids were begging to go outside and I had to tell them it was too cold. I call those pictures "outside".
Hugs!




Friday, February 4, 2011

Snow staycation

I call these pictures "SNOW GO". Please....GO.

As you can see, the babes love the snow. I had to get a few shots of this for Luke & Hannah bow because if God keeps them in Texas for as long as me/jon..then they might possibly not see this again in another 25 years. At least that's how long it's been for us!! WOW! Isn't this insane!








Tuesday, January 11, 2011

Snow day and recovering

Well, Lukester is feeling better. He has not coughed as much today and I totally give God the praise. Thank you for praying. We need a few more days of ABX in Hannah bow and I pray she feels better. Man...this has been 4 weeks of ****!

That said, todays' theme is "Squirrel in the snow". Luke said this about a cajillion times! LOL.

We bundled him up right outside the door while he played in the snow. Inside/outside fashionable wrapped in blankets. :)

I call these pictures "Snow Globe".

P.S. Pray for Hannah bow please......







Monday, January 10, 2011

Me and the babes! (Congenital Myasthenic Syndrome)

I was blessed with the Shuffields coming in town! We had the most amazing time ever! Here's a sneak peek of Tisha's pics! I love finally having pictures of me and the kids!!

This is one of many that I adore. I'm currently blowing up now and printing wraps for the walls next week. Can't wait to get them in.

Thank you Shuffields..I'm in love with them!!! LOVE YOU!!


Luke's recital

Over the last 2 weeks Luke has recited "Twas the night before Christmas" to me. It's the first page of the book we read and it's sooo cute. I've desperately tried to get this on video and in our failed attempt to get it all this video totally cracked me up.

I call this video "NOOO, NOOOO, NOOOO...THANK YOU".


Goal for 2011.


Time of day: 3pm.
Shirt of choice: His jammy top from the night before.
Shoes: His monkey house shoes.
Temperature outside: Have no clue.
Age of kid: 5
Where is his sister? No clue.
The million dollar question: What do I look like? No comment.
Judgement: go ahead...I'm numb and exhausted...hey, at least I'm the historian here.

Goals for 2011: Be a better mom. LOL! (enough said)



Luke's first official Christmas present!

Luke gets it this year. It's amazing, awesome and more awesome. We are thrilled.

That said, Luke struggles with 'new' things. In the last several months, He will embrace a 'new' thing if we give it to him for a moment. But then, he'll start freaking out and say BYE, BYE _____(insert item here) and then proceed to throw it across the room and run, hit, knock things over, etc. It's very frustrating for us as a family as we truly want to see his excitement and we **know** that he's excited. He just gets overwhelmed with the transition of having a new item. Does this make sense?

So, our new Christmas game plan. Dispatch "Mindy". Our speech therapist. She's amazing. She's attentive, gifted and truly **cares** about the well being of our child with the 'little' things. She goes out of her way to help us as parents. It's a blessing from God. I give Him the glory as I truly realize after today how much the little things mean to our family.

So, this video is your Christmas present Mindy. I did not give my therapists anything this year. Why? I honestly did not think about it until just now. Wow. Bad mommy. At any rate, I hope this blesses your Christmas holiday.

**If you are going to watch this video, you must watch it until the very end. It's soo key to see the end result. And yes...HE KEPT calm after the video stopped rolling. We are so excited!! Love you Mindy and thank you for **caring** about our dinky little dysfunctional family.


Piano!

House is spotless. All things are in place. Christmas lights are on. Food is bought. Presents are wrapped and most importantly...Laundry is done! YES..it's true. AND THE DISHES! :)

A very happy momma.

We are slowly feeling better from our sickness and by God's grace and mercy...we will all be well on Christmas day! THANK YOU JESUS.

Thank you Lord.

So...behold, my sibling piano video.

I call this video "Pester piano Hannah". She loves to pester brother and stick her index finger in his face at all times. It's hilarious. Notice Luke desperately trying to control himself from freaking out on her. LOL!

Love you blog family...May your Christmas be blessed.

Luke's OT therapy

Because I've been a slacker blogger, I'm trying to catch up to some fun events that happened over these last few months.

One in particular is Luke's progress in PT. (physical therapy). It's been amazing to watch and we are so thankful for his therapists. We are in awe of what they can get Luke to do! it's really pretty awesome.

That said, here is a glimpse of his hard work. He's our love bug. We are desperately in love with him and his accomplishments. I guess mainly because we think "wow..it's a miracle". Everytime.

Behold..Lukester! I call this video "Mountain furniture..and Luke".

Hugs!

Monday, November 15, 2010

Luke's birthday week!!

Forgive me bloggers! I've been really bad about updating!!

This week is Luke's birthday week! He turns 5 years old. We are so excited and thankful for our little man!!

For the moms/dads that have found this blog and have children with CMS...please message me...I would love to add your picture on our blog!

Much love and be back soon! MOM

Tuesday, May 11, 2010

Met another CMG friend!!


Her name is Lauren!

She's a true delight!!! Thanks Lauren for emailing!!

Monday, May 10, 2010

Happy Mother's Day

Happy Mother's Day to my momma+my mimi+my momma colleen+my MIL Lisa+my MIL Betty:

I love you!!! I pray all my sweet friends and blog friends have a fantastic Mother's day.

Below are our sweet babes that bless us abundantly!!

It takes a Village

My house is Grand Central Station. Seriously. I'm not kidding. When I tell you that my neighbors think we are having a party everyday because of the cars outside, I'm so not kidding.

It's insane.

So, Lisa Allen took this picture because we were putting on Luke's shoes.

It seriously takes a Village with my kids. A HUGE VILLAGE.

The picture below is called "Hannah's back". (lol) Ok, made me laugh. Just thought I'd throw you for a picture title curve ball. :) LOL again!

Blast from the past

Well hi happy blog family! It's blast from the past Friday again! This time: LUKESTER!

As you can see here at around 15mths old Luke was given this chair from ECI (Early childhood intervention) and what a little miracle this chair became in our home. It was a life saver for us as Luke had no muscle tone and could not sit up on his own.

So...guess what! Our ECI therapist brings in the same chair for HANNAH!! We laughed out loud because it brought back so many memories of Luke in it.

One day, as you can see below, Luke decided to sit in his "Childhood infant" chair. It was so funny to see his legs cascade over to the floor. Wow...our big boy is growing up so fast!

So...enjoy the blast from the past pics below. Note: BONUS OF HANNAH BELOW.

I call these pictures "Blue Chair".
PAST

PRESENT

BONUS! Hannah bow in the same seat now!


Have a great weekend blog family! Love you! A

My new thing


Today my primary nurse (day shift) Candi said that Luke was being a little toot with his work today at school. After a mini tantrum she was trying to discipline him accordingly and then he screamed at her across the room "Candi, bananas PLEASE!". Of course, she laughed and surrendered.
Many times Candi will text me pictures of Luke sliding down the slide at school. A sneak peek just for momma.
Then, when Luke is tired he will bypass me and snuggle with Candi. A refreshing relief since it's day time and momma has to work.
So, I'm blogging this post for Candi to say "I'm thankful for you Candi".
Thank you for loving my baby boy. And, thank you for loving my baby girl.
I feel blessed you have come into our home.
Big hugs--A

My new thing

Hi, it's me Luke.

Daddy gives me a bath.

Mommy freaks out on daddy because daddy will work on his computer around the corner.

Daddy says "I'm right here".

Mommy says "Kids can drown in 3 minutes and in 2 inches of water, I don't care...get in there".

Daddy and mommy get loud and scream at each other. (yes, we admit it)

So, last week, daddy gave me a bath.

Daddy freaks out when I walk in his office naked and dripping wet. I don't need help anymore. I just get out when I'm ready.

Mommy freaks out again. It's just my new thing.
Mommy calls this picture "bath legs".

The parting of the sea

I love the old testament. It's my truest love. I reflect back on it so much because it awes me. If that's even a word. "awes". Whatever the case, I'm inspired and moved by God's great word and His greatness in this historical event.

Can you only imagine? Blows my mind.

That said, it was a must for me this past weekend when all alone on Sunday. I had to put a "part" in between my kids because Hannah loves to pull Luke's hair and the drama can be too much when alone with no help!

So, I broke down the gate near the kitchen and drug it in the living room. I was done. At some point, I had to go to the bathroom and eat!!

So...behold, the parting of the living room! LOL!

Personal note: God is in all and over all. May I teach my kids accordingly and with great grace and love. God, I so pray this. I want them to know Him.

Exodus 14:21-23
21 Then Moses stretched out his hand over the sea, and all that night the LORD drove the sea back with a strong east wind and turned it into dry land. The waters were divided, 22 and the Israelites went through the sea on dry ground, with a wall of water on their right and on their left.



School field trip

Well, we did it. I did the parent field trip thingy and Luke did the ZOO.

Both equally a huge accomplishment. I swear..my child is SOO ME!

So, Luke did great. He had a huge sensory meltdown for the first 45 minutes. But, by God's grace, we managed thru it and thank GOD for my nurse CANDI! She's so intuitive and was so great during the whole process of him freaking out. I really needed this co-support for sure.

He finally got it together and then we browsed the zoo. It was so adorable to watch Luke so curious.

I, in all my cuteness as you can see below was really not into the whole parent chaperon thing so I opted to just take care of Luke. A parent tag along I guess you would say! LOL. I really wanted to focus on Luke. Which was seriously necessary since our last zoo visit was nothing short of a nightmare tagged with a crying fit all the way home.

So here goes! I call these pictures with the exception of a few that needed it's own title..."YAY! WE DID IT".

Place: Frank Buck Zoo in Gainesville, Texas
LUKE RODE THE BUS on the way there! He loves the bus!



His teacher Ms. Bird is waving at me above the giraffes! So funny!

The monkey's were seriously a 'pack' and it was funny to see them face me all at once! LOL
Above is Luke's Teacher Ms. Bird . We love her! Curly blonde smile lady here. Love her! Can you spot Luke?
Seriously...the picture above is my favorite picture. I call this picture "My Big boy".

The above picture in all its sweetness with my boy...is called "Fat arms".
Ok, hope you enjoyed! that was our Tuesday! love you! Andrea